March Check-Up

Mia's appointment today was uneventful, almost too uneventful.  She wouldn't stay still for an echo, so we didn't get any good pictures.  All our cardiologist saw was that her function looked good.  So then the question was brought up as to whether we need to do a sedated echo before doing a cath in May.  Ugh.  All I can say is ugh.  It sounds pretty definite that Mia will have a cath done in May and that will essentially tell us all the information that we need to know.  They will decide at that time whether or not Mia's left pulmonary artery (which is quite narrow) will need intervention or if it can wait until her surgery to be patched.  Which then brings me to the next thing that I talked to our doctor about at length.  Mia's Fontan.  We thought it was pretty set for it to be in August/September of this year.  Now we don't know.  It will all be determined by the cath that's done in May, or the potential cath in May.  That didn't even seem certain after today's discussion.  I left today feeling very frustrated, lost and defeated.  It's so incredibly hard for me to not have a cut and dry answer with this.  Mentally I want to prepare myself for the fact that my daughter's chest is going to be cut open, her ribs cracked and her heart operated on, yet again.  But it's very hard to even begin preparing when we don't really know when that is going to be happening.  It could be happening in 5-6 months like we thought the plan was, or it may not be happening for over a year.  The surgery will not take place between November and March/April due to it being the height of flu season.  We knew there was a ton of uncertainty involved with Mia's care, but sometimes it is just too much.